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Let’s Talk About Sickness and (Mental) Health

This week is Bell Canada’s annual Let’s Talk event, which aims to get people talking about mental health. So, I decided to once again take some time this week to take a critical look at the initiative and the types of conversations it activates.

Aside from raising money for mental health research, Bell Let’s Talk is focused on reducing stigma, engaging with the ways mental illness is minimized and stigmatized. This year’s campaign features the #SickNotWeak hashtag campaign, generated by spokesperson Michael Landsberg, which aims to reconfigure the ways we look at people with mental health.

“The perception has been and still is that somehow we bring on our own mental illness through weakness of character. ‘I am sick not weak.’ If we believe that, the stigma will fade”

  • Michael Landsberg
Male doctor holding his finger to his mouth saying "shhh"
What’s his secret? He’ll never tell.

This hashtag is intended to be a battle cry for those with mental illness, equal parts embracing of distress and acknowledging the inner strength to persevere. This campaign is brought on by the stigma that ‘mental illness’ is not real, that people with depression are simply making it up, or that depressed people just aren’t trying hard enough. The campaign implies that having mental illness anointed as a real ‘sickness’ will legitimize the experiences of sufferers–not unlike the push to acknowledge addiction as a disease and not a choice. Once someone is diagnosed with a sickness, our society believes they deserve to receive care and support–they are not responsible for what is happening to them and, as such, we as a society have a duty to pay restitution.

Another male doctor holding his finger to his mouth saying "shhh"
Wait why are there so many stock photos of doctor’s making this gesture on Google?

It is perversely fitting that last week in the Toronto Star we saw the most recent incarnation of the belief that mental illness is somehow fake, with (horrifyingly…) a University of Toronto professor presenting the trendy meme that modern university students (and millennials more generally) are emotionally fragile and incapable of dealing with the harsh realities of the world. The author demands that students with mental illness come out with their labels or else not be accommodated on a university campus. Why is it that none of my professors required to know the specifics of my disability (diagnosis or anything else) yet I was offered accommodations, like extended exam time in quiet rooms that the author seems to argue against here, with almost no opposition? In part, I believe, it is because my physical disability is seen as a valid limitation, deserving of accommodation, whereas the mentally ill cannot prove their limitations are legitimate in the same way.

Female doctor also holding her finger to her mouth saying "shhh"
Okay seriously…WHO IS TAKING ALL THESE PHOTOS?!

Despite the obvious benefits of the legitimizing power of sickness, a disability studies perspective, and my experiences with a physical disability, make me feel that perhaps this is not the right direction to go in the fight for mental health. Wheelchair users have long been seen as “really” disabled through our proximity to hospitals and sickness. On the one hand, being thought of as “sick” can render certain privileges, such as ease of access to charitable donations, being excused from work without penalty, and facing little resistance to accommodations when attending school. All of these benefits are things people with mental illness want/need and presumably once the mentally ill are anointed as ‘sick’ too, the grassy sun-kissed fields of accommodation will be open for them to frolic across as well. But clenched within the other hand lurks a dark reality. In the long term, the ‘sick role’ has only served to further subjugate the physically disabled, as they now fight the uphill battle of convincing the normals that they are not sick, contagious, or pitiful. In some ways, the benefits won by subjecting ourselves to the label of sickness can become that which ensnares us within a complicated social service system that does plenty to ensure we subsist but little to help us actually thrive.

Another female doctor holding her finger to her mouth saying "shhh"
STAAAAAHP!!!!

Mental illness is real. It has always been real, it is not a new thing (even if we refused to talk about it before) and those who live with it struggle in ways that others do not. But I’m not so sure the path to mental health is paved in diagnosis and medicalization. Rather, I wonder if it is paved through collective compassion and empathy. The path to mental health is not paved by “proof” of suffering or consolidation under the medical model, but through accommodation and support being offered to all who struggle to function in a normative world. Regardless of the reason.

The pathway to mental health is in identifying and rectifying the ways our very world, physical and imagined, disable us. Yes, we are not all disabled the same, but disabled all the same we are.

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Status Symbols and the Tie

When I was younger, I never thought I would be a tie person. I was not particularly fond of fashion, did not understand the appeal of brands, and was torn about the tuxedo I had to wear when on the MDAC telethons. Even if it made me look a bit like James Bond, the tuxedo wasn’t particularly comfortable. But now that I’ve gotten wiser older, I have started to embrace the tie. I like the way they look and find the process of tying them soothing and mindful. Mostly, though, I wear ties now because of what they symbolize.

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Staring and Why it Matters

One of the more common questions I get asked when delivering lectures or motivational speeches is how I feel about people staring at me in public and what advice I have on managing ‘the stare’. The idea of staring and disability has been written about extensively, both within and outside academia, with the common discourse being that it is at best annoying and at worst offensive. I have a slightly different perspective on the subject and thought it was worth sharing here.

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Transability and the Downfall of Society

The social web has been all aflutter for the past week, stirred up by a viral National Post article focused on the concept transability — people who believe they should be disabled and, in extreme cases, disable themselves to live out their preferred identity. Transability, more appropriately (in my opinion) known as Body Integrity Identity Disorder (BIID), is not new — some studies on the topic go back well into the 1980s. BIID is also not new to the media either, as there’s a fascinating documentary about the subject from over a decade ago titled Whole (2003) which loosely inspired the odd Nick Stahl film, Quid Pro Quo (2008). The rise of BIID to mainstream frame, however, seems tethered to the transgendered movement, with many conservatives deploying this article as some sort of slippery slope warning that if you start letting people reassign their gender than logically the next step is people will begin demanding disabilities. The horror! Of course, things are not quite as simple as they might seem and this blog post hopes to explore some random thoughts I’ve been trying to gather in my head for the past few years.

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The Benefits of Bullying

I have been delivering (questionably) motivational speeches for schools and community groups since the dawn of time, talking to kids about disability and encouraging them to challenge ableism in all its manifestations. After my talks, I usually do a Q&A with the students because I feel like it’s a more authentic way to talk about things and hope that if they can get answers to all their burning questions about disability it will help naturalize difference. Inevitably, a student will ask about bullying and if I have any suggestions on how to stop it. I honestly dread this question because I’ve never been quite sure how to respond. I usually sidestepped the question with a spiel about self-confidence, talking to friends/adults, and it getting easier with age. I knew it wasn’t a great answer, but bullying seemed (and still seems) like something so much bigger than myself. But after thinking about it for years, I’ve decided to finally take a moment and answer this question once and for all.

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Andrew Lawton is not a scandal

Last week, AM980 conservative radio host Andrew Lawton had an epically bad week. Inflammatory comments made both online and on the air by Lawton have dominated the attention of Londoners, with some demanding AM980 fire him immediately while others promise said action will only make Lawton a martyr for free speech. Obviously, AM980 is in a tough position, where no matter what they do someone will be upset. But in this post, I would like to suggest that we’ve missed the forest for the trees here and aren’t actually talking about what really matters.

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How #BellLetsTalk is both problematic and vital

If you’ve been on social media this morning, you no doubt have discovered that it’s #BellLetsTalk Day in Canada. An initiative started several years ago, #BellLetsTalk aims to open up conversations about mental health with the promise that every tweet or post using the hashtag #BellLetsTalk on social media will garner a donation of $0.05 from Bell Canada. But is this campaign really about mental health or just a crowd-sourced advertising campaign for Bell Canada?

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Are the disabled ‘afflicted’?

On January 6th, I was invited to speak on AM980’s Andrew Lawton Show about a recent Facebook post on the radio station’s fan page stating Trig, Sarah Palin’s son, was “Down Syndrome-afflicted.” Mr. Lawton and I had an engaging conversation around whether or not the term “afflicted” is offensive or if people are simply nitpicking for political correctness. For those who were not able to tune in to the broadcast, I’ve decided to write a short meandering blog post outlining why we need to stop referring to disabled people as being “afflicted.”

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Why Viktoria Modesta doesn’t rethink disability

The Internet has been abuzz over the past week of a new “bionic” pop star, Viktoria Modesta. Modesta’s meteoric rise is thanks to Channel 4’s “Born Risky” campaign, which provides resources and support for “alternative voices” that would otherwise struggle to break into the mainstream. Leading the campaign is Modesta with her song “Prototype,” the beginning of which demands the viewer to “forget what you know about disability.” But for a text that demands the viewer to “forget” what we know about disability, it seems to spend a lot of time marinating in the juices of all-too-familiar tropes and images of disability. Is Viktoria Modesta really revolutionary or is she simply Lady Gaga with one leg?

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An Open Letter to Justin Trudeau

The following is an open letter I sent to Justin Trudeau this morning regarding the lack of accessibility at Liberal Party events.